ALAN – Maladies Rares Luxembourg is a non-profit association founded in 1998 and declared of
public utility in 2000. It is ALAN’s mission to improve the quality of life of individuals who are affected
by a rare disease.
ALAN provides a consultation service that offers psychological counselling, as well as social and
administrative support to inform, guide and assist people affected by a rare disease. ALAN offers a
range of adapted recreational and physical activities to improve well-being, self-confidence and self-
esteem.
In addition to these services, ALAN disseminates information to increase awareness amongst the
public, decision-makers, authorities and institutions and actively participates in the implementation of
the National Plan for Rare Diseases.
In addition, ALAN advocates for recognition and policy changes on a national and European level,
and aims to facilitate interdisciplinary exchanges between professionals from the healthcare, social
and educational sectors.
